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1

Evaluating Sensory Processing in Fragile X Syndrome: Psychometric Analysis of the Brain Body Center Sensory Scales (BBCSS)

Kolacz, Jacek, Raspa, Melissa, Heilman, Keri J., Porges, Stephen W.

Journal:

Journal of Autism and Developmental Disorders

Year:

2018

Language:

english

File:

PDF, 1019 KB

english, 2018

2

A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability

Ouyang, Lijing, Grosse, Scott D., Riley, Catharine, Bolen, Julie, Bishop, Ellen, Raspa, Melissa, Bailey, Donald B.

Journal:

Research in Developmental Disabilities

Year:

2014

Language:

english

File:

PDF, 1.23 MB

english, 2014

3

Sensory Difficulties in Children With an FMR1 Premutation

Raspa, Melissa, Wylie, Amanda, Wheeler, Anne C., Kolacz, Jacek, Edwards, Anne, Heilman, Keri, Porges, Stephen W.

Journal:

Frontiers in Genetics

Year:

2018

Language:

english

File:

PDF, 233 KB

english, 2018

4

A comparison of functional academic and daily living skills in males with fragile X syndrome with and without autism

Raspa, Melissa, Franco, Vitor, Bishop, Ellen, Wheeler, Anne C., Wylie, Amanda, Bailey, Donald B.

Journal:

Research in Developmental Disabilities

Year:

2018

Language:

english

File:

PDF, 1.40 MB

english, 2018

5

Anxiety, attention problems, hyperactivity, and the Aberrant Behavior Checklist in fragile X syndrome

Wheeler, Anne, Raspa, Melissa, Bann, Carla, Bishop, Ellen, Hessl, David, Sacco, Pat, Bailey, Donald B.

Journal:

American Journal of Medical Genetics Part A

Year:

2014

Language:

english

File:

PDF, 351 KB

english, 2014

6

Family Communication and Cascade Testing for Fragile X Syndrome

Raspa, Melissa, Edwards, Anne, Wheeler, Anne C., Bishop, Ellen, Bailey, Donald B.

Journal:

Journal of Genetic Counseling

Year:

2016

Language:

english

File:

PDF, 348 KB

english, 2016

7

Using a Parent Survey to Advance Knowledge About the Nature and Consequences of Fragile X Syndrome

Bailey, Donald B., Raspa, Melissa, Olmsted, Murrey G.

Journal:

American Journal on Intellectual and Developmental Disabilities

Year:

2010

Language:

english

File:

PDF, 136 KB

english, 2010

8

Seizures in Fragile X Syndrome: Characteristics and Comorbid Diagnoses

Berry-Kravis, Elizabeth, Raspa, Melissa, Loggin-Hester, Lisa, Bishop, Ellen, Holiday, David, Bailey, Donald B.

Journal:

American Journal on Intellectual and Developmental Disabilities

Year:

2010

Language:

english

File:

PDF, 177 KB

english, 2010

9

Caregiver Preferences for the Treatment of Males with Fragile X Syndrome

Cross, James, Yang, Jui-Chen, Johnson, F. Reed, Quiroz, Jorge, Dunn, Judith, Raspa, Melissa, Bailey, Donald B.

Journal:

Journal of Developmental & Behavioral Pediatrics

Year:

2016

Language:

english

File:

PDF, 519 KB

english, 2016

10

Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder

Wagner, Laura, Frisch, MaryKate, Turner-Brown, Lauren, Andrews, Sara, Edwards, Anne, Moultrie, Rebecca, Alvarez Rivas, Alexandra, Wheeler, Anne, Raspa, Melissa

Journal:

Disability and Health Journal

Year:

2020

File:

PDF, 282 KB

2020

11

Modeling Family Adaptation to Fragile X Syndrome

Raspa, Melissa, Bailey, Donald B., Bann, Carla, Bishop, Ellen

Journal:

American Journal on Intellectual and Developmental Disabilities

Year:

2014

Language:

english

File:

PDF, 508 KB

english, 2014

12

Autism Symptoms Across Adulthood in Men with Fragile X Syndrome: A Cross-Sectional Analysis

Hartley, Sigan L., Wheeler, Anne C., Mailick, Marsha R., Raspa, Melissa, Mihaila, Iulia, Bishop, Ellen, Bailey, Donald B.

Journal:

Journal of Autism and Developmental Disorders

Year:

2015

Language:

english

File:

PDF, 429 KB

english, 2015

13

Health and Economic Consequences of Fragile X Syndrome for Caregivers

Bailey, Donald B., Raspa, Melissa, Bishop, Ellen, Mitra, Debanjali, Martin, Susan, Wheeler, Anne, Sacco, Pat

Journal:

Journal of Developmental & Behavioral Pediatrics

Year:

2012

Language:

english

File:

PDF, 251 KB

english, 2012

14

Prevalence, Nature, and Correlates of Sleep Problems Among Children with Fragile X Syndrome Based on a Large Scale Parent Survey

Kronk, Rebecca, Bishop, Ellen E., Raspa, Melissa, Bickel, Julie O., Mandel, Daniel A., Bailey, Donald B.

Journal:

Year:

2010

Language:

english

File:

PDF, 445 KB

english, 2010

15

Mavoglurant in adolescents with fragile X syndrome: analysis of Clinical Global Impression-Improvement source data from a double-blind therapeutic study followed by an open-label, long-term extension study

Bailey, Donald B., Berry-Kravis, Elizabeth, Wheeler, Anne, Raspa, Melissa, Merrien, Florence, Ricart, Javier, Koumaras, Barbara, Rosenkranz, Gerd, Tomlinson, Mark, von Raison, Florian, Apostol, George

Journal:

Journal of Neurodevelopmental Disorders

Year:

2016

Language:

english

File:

PDF, 699 KB

english, 2016

16

Decisional Capacity for Informed Consent in Males and Females with Fragile X Syndrome

Wheeler, Anne C., Wylie, Amanda, Raspa, Melissa, Villagomez, Adrienne, Miller, Kylee, Edwards, Anne, DeRamus, Margaret, Appelbaum, Paul S., Bailey, Donald B.

Journal:

Journal of Autism and Developmental Disorders

Year:

2019

Language:

english

File:

PDF, 2.10 MB

english, 2019

17

Self-Injurious Behavior and Fragile X Syndrome: Findings From the National Fragile X Survey

Symons, Frank J., Byiers, Breanne J., Raspa, Melissa, Bishop, Ellen, Bailey, Donald B.

Journal:

American Journal on Intellectual and Developmental Disabilities

Year:

2010

Language:

english

File:

PDF, 285 KB

english, 2010

18

Measuring Family Outcomes

Bailey, Donald B., Hebbeler, Kathleen, Olmsted, Murrey G., Raspa, Melissa, Bruder, Mary Beth

Journal:

Infants & Young Children

Year:

2008

Language:

english

File:

PDF, 115 KB

english, 2008

19

Obesity, Food Selectivity, and Physical Activity in Individuals With Fragile X Syndrome

Raspa, Melissa, Bailey, Donald B., Bishop, Ellen, Holiday, David, Olmsted, Murrey

Journal:

American Journal on Intellectual and Developmental Disabilities

Year:

2010

Language:

english

File:

PDF, 173 KB

english, 2010

20

Health and reproductive experiences of women with an FMR1 premutation with and without fragile X premature ovarian insufficiency

Wheeler, Anne C., Raspa, Melissa, Green, Annette, Bishop, Ellen, Bann, Carla, Edwards, Anne, Bailey, Donald B.

Journal:

Frontiers in Genetics

Year:

2014

Language:

english

File:

PDF, 1.58 MB

english, 2014

21

Co-occurring conditions associated with FMR1 gene variations: Findings from a national parent survey

Donald B. Bailey Jr, Melissa Raspa, Murrey Olmsted, David B. Holiday

Journal:

American Journal of Medical Genetics Part A

Year:

2008

Language:

english

File:

PDF, 286 KB

english, 2008

22

Examining Parentsʼ Experiences and Information Needs Regarding Early Identification of Developmental Delays

Raspa, Melissa, Levis, Denise M., Kish-Doto, Julia, Wallace, Ina, Rice, Catherine, Barger, Brian, Green, Katie K., Wolf, Rebecca B.

Journal:

Journal of Developmental & Behavioral Pediatrics

Year:

2015

Language:

english

File:

PDF, 556 KB

english, 2015

23

Medication Utilization for Targeted Symptoms in Children and Adults With Fragile X Syndrome

Bailey, Donald B., Raspa, Melissa, Bishop, Ellen, Olmsted, Murrey, Mallya, Usha G., Berry-Kravis, Elizabeth

Journal:

Journal of Developmental & Behavioral Pediatrics

Year:

2012

Language:

english

File:

PDF, 566 KB

english, 2012

24

Caregiver opinions about fragile X population screening

Bailey, Donald B., Bishop, Ellen, Raspa, Melissa, Skinner, Debra

Journal:

Genetics in Medicine

Year:

2012

Language:

english

File:

PDF, 385 KB

english, 2012

25

Implications of the FMR1 Premutation for Children, Adolescents, Adults, and Their Families

Wheeler, Anne, Raspa, Melissa, Hagerman, Randi, Mailick, Marsha, Riley, Catharine

Journal:

Year:

2017

Language:

english

File:

PDF, 571 KB

english, 2017

26

Integration of an atmospheric dispersion model with a dynamic multimedia fate model: Development and illustration

Melissa Morselli, Davide Ghirardello, Matteo Semplice, Giuseppe Raspa, Antonio Di Guardo

Journal:

Environmental Pollution

Year:

2012

Language:

english

File:

PDF, 347 KB

english, 2012

27

Public Health Literature Review of Fragile X Syndrome

Raspa, Melissa, Wheeler, Anne C., Riley, Catharine

Journal:

Year:

2017

Language:

english

File:

PDF, 696 KB

english, 2017

28

Child Care Quality and Children's Engagement

Raspa, Melissa J., McWilliam, R. A., Maher Ridley, Stephanie

Journal:

Early Education and Development

Year:

2001

Language:

english

File:

PDF, 104 KB

english, 2001

29

Improving the SoilPlusVeg model to evaluate rhizoremediation and PCB fate in contaminated soils

Terzaghi, Elisa, Morselli, Melissa, Zanardini, Elisabetta, Morosini, Cristiana, Raspa, Giuseppe, Di Guardo, Antonio

Journal:

Environmental Pollution

Year:

2018

Language:

english

File:

PDF, 1.32 MB

english, 2018

30

Exploring the Adult Life of Men and Women With Fragile X Syndrome: Results From a National Survey

Hartley, Sigan L, Seltzer, Marsha Mailick, Raspa, Melissa, Olmstead, Murrey, Bishop, Ellen, Bailey,, Donald B

Journal:

American Journal on Intellectual and Developmental Disabilities

Year:

2011

Language:

english

File:

PDF, 364 KB

english, 2011

31

Early Identification of Fragile X Syndrome through Expanded Newborn Screening

Okoniewski, Katherine, Wheeler, Anne, Lee, Stacey, Boyea, Beth, Raspa, Melissa, Taylor, Jennifer, Bailey, Donald

Journal:

Year:

2019

Language:

english

File:

PDF, 219 KB

english, 2019

32

Service Provider Combinations and the Delivery of Early Intervention Services to Children and Families

Raspa, Melissa, Hebbeler, Kathleen, Bailey, Donald B., Scarborough, Anita A.

Journal:

Infants & Young Children

Year:

2010

Language:

english

File:

PDF, 108 KB

english, 2010

33

Health care for individuals with fragile X Syndrome: Understanding access and quality

Wheeler, Anne C., Wylie, Amanda, Villagomez, Adrienne, Bishop, Ellen, Raspa, Melissa

Journal:

Disability and Health Journal

Year:

2018

Language:

english

File:

PDF, 571 KB

english, 2018

34

“Just tell me what’s going on”: The views of parents of children with genetic conditions regarding the research use of their child’s electronic health record

Andrews, Sara M, Raspa, Melissa, Edwards, Anne, Moultrie, Rebecca, Turner-Brown, Lauren, Wagner, Laura, Alvarez Rivas, Alexandra, Frisch, Mary Katherine, Wheeler, Anne C

Journal:

Journal of the American Medical Informatics Association

Year:

2020

File:

PDF, 308 KB

2020

35

DSM-5 Changes and the Prevalence of Parent-Reported Autism Spectrum Symptoms in Fragile X Syndrome

Wheeler, Anne C., Mussey, Joanna, Villagomez, Adrienne, Bishop, Ellen, Raspa, Melissa, Edwards, Anne, Bodfish, James, Bann, Carla, Bailey, Donald B.

Journal:

Journal of Autism and Developmental Disorders

Year:

2015

Language:

english

File:

PDF, 672 KB

english, 2015

36

Functional Skills of Individuals With Fragile X Syndrome: A Lifespan Cross-Sectional Analysis

Bailey, Donald B., Raspa, Melissa, Holiday, David, Bishop, Ellen, Olmsted, Murrey

Journal:

American Journal on Intellectual and Developmental Disabilities

Year:

2009

Language:

english

File:

PDF, 1.20 MB

english, 2009

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